Held Back

Freddy got diagnosed with a blood disorder when he was just over one year old. He got a cold, which turned into a cough which turned into pneumonia and his little body was working too hard making red blood cells to even remotely fight the pneumonia. It's a rare hereditary blood disorder, and I'm so thankful that it hasn't affected his life too much. Once in a while when his body can't keep up with the rapid rate of red blood cell destruction, we bring him to the hospital for blood work and if need be, transfusions.

There's this image in my mind. No, it's in not just in my mind, it's in the gap between my skin and memory, my senses and instincts. That space that juts out into our lives whether we want it to or not like a sharp rock between here and there, a space where we can either stand upon or lose ourselves on. And it's of Freddy's tiny toddler body, bound in a hospital bed sheet in a way that kept him still enough to give blood for tests. He was too young to understand that we bound him to help him. He fought hard against us, against the binding force, his iron will flexing and pushing, the angst inside his body practically bursting through his skin and all I could do was stand there and helplessly watch him fight.

I've seen this scene manifest in different ways with each child. It's not a hospital sheet, in an emergency room. It's on a couch. It's in the backseat of the van. It's in a restaurant, it's at home. It's here and there and everywhere in between but to me, it looks the same, that my child's angst is practically bursting through their skin and all I can do is stand there and helplessly watch them fight.

I want to unzip the gap, gather my babies in my arms and duck us all down beneath the great divide between here and there, stand upon that rock, and know peace. And know peace. To close up the unknown and lie still in the safety of love where there is no pain, there is no fight, there is no angst.

But then we wouldn't move forward.